Sightsavers Reports

Planning, implementing and evaluating morbidity management and disability prevention (MMDP) using community based participatory research with patients and frontline service providers

Status: In progress

Main Objectives

  • To evaluate and develop MMDP services in Nigeria to be responsive to patient and provider perspectives using community based participatory research approaches in a participatory action research cycle
  • To develop intersectional understanding of MMDP and equity of access
  • Evaluate the completeness of the minimum package from the patient perspective
  • Embed findings into ongoing integrated MMDP programme development and roll out.

Summary

Great gains have been made in accelerating the Global commitment to eliminate Lymphatic filariasis (LF) as a public health problem however persons living with these disabilities suffer varying manifestations and acute attacks which can be debilitating. As a result, those affected require additional health services to address and manage morbidity and prevent permanent disability that go beyond the platform for Mass Drug Administration (MDA).

This MMDP research seeks to understand the challenges and needs of the people affected by NTDs and the co-endemic diseases through active participation of affected persons and health providers using the community based participatory research (CBPR) approach. The CBPR approach is guided by the underlying principles of mutual respect, mutual dialogue and shared decision making. The approach also enables community members including people living with disabilities to identify key problems and solutions to inform how programmes and policies can be altered to improve access to healthcare services.

The disease focus of the research is Lymphatic filariasis (Lymphoedema & Hydrocele) with integration of co-endemic priority diseases with MMDP needs which include Leprosy, Buruli ulcer, Trichiasis and Yaws.

The research is being carried out in Kebbi and Benue states.

Resources

World NTD Day – 12 Days of NTDs – a PDF of illustrations from the research

Main Contact

Ruth Dixon
Technical Advisor, NTD Research
Sightsavers, UK
[email protected]

Partners

Nigeria Federal Ministry of Health
Liverpool School of Tropical Medicine

Funder

Logo for the Task Force for Global Health

Duration

19 months

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